Every family deserves to know
Raising awareness of expanded prenatal screening and supporting families after a 22q11.2 DiGeorge Syndrome diagnosis, in memory of our son, William.
Why we started
Project William
In June 2026, our son William Patrick Howard was born with 22q11.2 deletion syndrome, also known as DiGeorge syndrome.
Every ultrasound had been normal. Our standard NIPT came back low-risk.
We didn't know advanced screening existed.
We lost William at birth. Project William is how we carry him forward.
What we’re working towards
Awareness of expanded
prenatal screening
Standard NIPT checks for Trisomy 21, 18 and 13. Expanded panels exist, yet most parents are never told they exist. We want every pregnant woman in Australia to know her options.
Support from the
point of diagnosis
When we received our diagnosis at 33 weeks, we couldn’t find a single story that looked like ours. We want families facing a prenatal 22q diagnosis to know they aren’t alone.
Medicare funding
for NIPT
NIPT isn’t covered by Medicare, which puts it out of reach for many families. We’re advocating for Medicare funding so screening isn’t decided by what you can afford.